QUOTE
Dear Mr *Harlequin*,
Invitation to join a national medical research study
We are writing to ask for your help in studying the prevention of cancer, heart attacks, strokes, diabetes and many other serious diseases. This medical research project - called "UK Biobank" - will involve 500,000 people aged 40-69 from all around the UK. Taking part may not help you directly - but, it should give future generations a much better chance of living their lives free of diseases that disable and kill.
UK Biobank has been set up by the government through the Department of Health, Medical Research Council and Scottish Executive, and by the Welcome Trust medical Charity. It is also supported by other charities, such as the British Heart Foundation and Cancer Research UK, as well as by the National Health Service.
People to invite are being identified from NHS records which have been processed, in confidence. on behalf of the NHS. We do not have access to your medical records. Our invitation letters are going to some millions of people in the UK and sometimes, unfortunately, may arrive at difficult times in peoples lives. I f this is the case with you, please accept our apologies for troubling you.
What taking part involves: All we are asking is that you give just over i hour of your time once at a study assessment centre. First, you will be told more about the study, and have any questions answered. Then, you will be asked about your health and lifestyle, have some standard medical test, and provide blood and urine samples. Subsequently. with your permission (and in complete confidence), we would follow your health through medical and other relevant records. The enclosed leaflet tells you more, and further details can be obtained by calling 0800-0-276-276 or looking at our website www.ukbiobank.ac.uk
It seems at first glance to be a good idea, there's nothing wrong in trying to help future generations, but I'm suspicious (or paranoid), and I can also see this as a back door data collection system for the so called National database which the current government wants to set up. There is also the chance that the collected data will be sold off to pharmaceutical companies.
I need other opinions on the matter. I would welcome yours.
