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Harlequin
Both me and my partner have received a letter from the "Biobank uk". It's as follows...

QUOTE

Dear Mr *Harlequin*,
Invitation to join a national medical research study


We are writing to ask for your help in studying the prevention of cancer, heart attacks, strokes, diabetes and many other serious diseases. This medical research project - called "UK Biobank" - will involve 500,000 people aged 40-69 from all around the UK. Taking part may not help you directly - but, it should give future generations a much better chance of living their lives free of diseases that disable and kill.

UK Biobank has been set up by the government through the Department of Health, Medical Research Council and Scottish Executive, and by the Welcome Trust medical Charity. It is also supported by other charities, such as the British Heart Foundation and Cancer Research UK, as well as by the National Health Service.
People to invite are being identified from NHS records which have been processed, in confidence. on behalf of the NHS. We do not have access to your medical records. Our invitation letters are going to some millions of people in the UK and sometimes, unfortunately, may arrive at difficult times in peoples lives. I f this is the case with you, please accept our apologies for troubling you.

What taking part involves: All we are asking is that you give just over i hour of your time once at a study assessment centre. First, you will be told more about the study, and have any questions answered. Then, you will be asked about your health and lifestyle, have some standard medical test, and provide blood and urine samples. Subsequently. with your permission (and in complete confidence), we would follow your health through medical and other relevant records. The enclosed leaflet tells you more, and further details can be obtained by calling 0800-0-276-276 or looking at our website www.ukbiobank.ac.uk


It seems at first glance to be a good idea, there's nothing wrong in trying to help future generations, but I'm suspicious (or paranoid), and I can also see this as a back door data collection system for the so called National database which the current government wants to set up. There is also the chance that the collected data will be sold off to pharmaceutical companies.

I need other opinions on the matter. I would welcome yours.
ice
ha-ha 40-69 thats not me yet very nearly but not yet


but yes i would help, they have enough info on all of us what harm could a little more do?

but i am a lowly women what do i know
Harlequin
QUOTE(ice @ Apr 29 2006, 10:57 PM) *

but i am a lowly women what do i know


What's that got to do with anything?...your opinion is as valid as anyone else's blink.gif
oolongcha
I would say that this worth doing.

A healthy degree of distrust is always a good thing, but in this case, what would the fear of being included on a giant database actually entail? It would entail multiple agencies (Bbiobank and the appropriate Home Office Big Brother Agency) talking to one another and passing on information. What do the Ian Huntly and Victoria Climbie cases have in common with the latest fiasco surrounding people released without being considered for deportation? A catastrophic failure of bureaucracies to exchange and pass on information within the same department, let alone cross departments.

If there are any grounds to your fears, it'll be worth betting that it'll scuttled by an innate incompetence on 'their' behalf biggrin.gif
Harlequin
QUOTE(oolongcha @ Apr 30 2006, 02:28 PM) *

I would say that this worth doing.

A healthy degree of distrust is always a good thing, but in this case, what would the fear of being included on a giant database actually entail? It would entail multiple agencies (Bbiobank and the appropriate Home Office Big Brother Agency) talking to one another and passing on information. What do the Ian Huntly and Victoria Climbie cases have in common with the latest fiasco surrounding people released without being considered for deportation? A catastrophic failure of bureaucracies to exchange and pass on information within the same department, let alone cross departments.

If there are any grounds to your fears, it'll be worth betting that it'll scuttled by an innate incompetence on 'their' behalf biggrin.gif


Noted.

I just feel that I've spent so long banging on against these "Data Collection" agencies that'll it'll pure hypocrisy on my part to help one of them out...I've painted myself into a corner.
Harlequin
I'm booked in Saturday 3rd June....I'm going to have my DNA recorded for future posterity.
ice
yeah , another one for the police files ,we will catch you males out yet
easylife
Is Harliquin your real surname. Dear mr Harliquin, i dint realise that, its quite an unusual name that, gonna look in the phone book see if there is anymore harliquins in there
Harlequin
Well Saturday the 3rd came and went, and I fulfilled my promise to the BioBank. There's not really much to say, they were very slick and everything passed without a hitch. Some questions, some body measurements, samples of blood and urine (not in the same jar I might add) and a cup of cheap coffee.

I can now only hope that it was for some noble cause and not just a way for pharmaceutical companies to collect data on a specific age group.
oolongcha
I'm sure that you've done something useful smile.gif
ice
well done, you have do your good deed biggrin.gif
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